AffloVest Review and Update
Sadly the time has come and my AffloVest trial is over. I'm definitely bummed to see it leave. I thought about holding it hostage, but then remembered they know where I live. Dang it! There's so...
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Catching up
Clearly my blog updates have been few and far between lately. Being that I've had some freedom with the AffloVest, I haven't spent as much time in front of my computer. So, let's do a little catch up...
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CF Appointment 12.4.2019
I've concluded my 2019 CF visits - got all 4 in, as usual! This appointment was a bit of an overload as the main focus of my visit was to talk about Trikafta. Being that my mom has lots of questions...
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Trikafta is coming
It’s happening!! I’m super excited and nervous all at the same time about starting Trikafta. Now that it’s been approved, I wanted to share a bit more about my thought process and some extra “stuff”...
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Trikafta Update
Happy New Year friends and family! I hope everyone enjoyed the holidays. I sure did! The best thing was getting to see my niece and nephews. Nothing can top them. But a close second, was getting...
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1 Month of Trikafta
It's kind of crazy that 4 weeks have flown by on Trikafta. Tuesday was my 1 month follow up since starting. As I mentioned before (here), my CF clinic is participating in a study to track my...
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AffloVest & Trikafta Updates
I'm currently sitting at my desk typing this blog as I'm using my brand new AffloVest!! How's that for an update? It's all mine, they can't take it back, forever and ever! Woohoo!! I'll spare you all...
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Day 68 Update
It's been a week and a couple days now and I've almost thrown in the towel a few times. But, I'm trying to be strong. Living without candy and pop (or soda as some call it) is tough. Yet, it's...
View ArticleSocial distancing starts now!
With the craziness of COVID-19, I’ve been doing a lot of thinking and planning for the upcoming weeks. Having CF, puts me and may others in the high-risk category which can be a bit nerve-racking. So...
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Quarantine Update
I'm now on my 4th week of self quarantine...time is actually flying by pretty fast. I'm finding it important to keep a routine each day, so I can keep myself accountable and make sure I don't turn...
View ArticleQuarantine Update...again
Greetings from quarantine! This is week #9 at our house. Thankfully, we are still doing well and staying healthy. Definitely getting stir crazy at times and ready for a change. But, we gotta keep...
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CF Appointment 6.17.2020
This week was my 1st in-person CF clinic visit for the year. Thankfully, I was able to have a virtual appointment in April to check in and I had a Trikafta study visit in January, so I've definitely...
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Pupdate
It's been quite a while since we've had a Pupdate! And what better time to have one as these goofballs just celebrated their 9th birthday!!!Fortunately, things have been relatively quiet on the...
View ArticleCF Appointment 9.16.2020
Anyone else feel like they blinked and it was September? This year has been the longest and fastest at the same time. The monotony of the days make them all a blur of walks, Netflix and doing...
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October Check In
It's been a busy few weeks since my last update. The last weekend in September, we had our virtual Great Strides walk. We had just a few friends come over and we walked around our neighborhood, but...
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26 Days
Its been 26 days. I don't know how that much time has passed, but yet it still seems like moments ago. I've contemplated this post a million times, but whenever I start to type I shut down. I've...
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Quarantine Catch Up
I apologize for my silence the past few months. I won't lie...it's been rough. And now we are at the 1 year mark from when I started hunkering down due to Covid-19 (read here). I never would have...
View ArticleCatching up on CF Appointments
Good gracious! It has been since March. Not sure how that happened, but I guess I've just been busy with life.I'll do a quick catch up on my health and CF appointments. I had an appointment in March...
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Pupdate: Stella the Tripawd Bulldog
My girl Stella is a BADASS. She is handling life on 3 legs and chemo treatments like the champion I know she is.Quick catch-up on the diagnosis process. We noticed a limp starting in January, but we...
View ArticleHappy Fall Ya'll
WOW - I have been really bad at keeping my blog updated. Sorry friends!There isn't a whole lot to share, but the best news is that Stella has completed her chemo treatments and is doing great! She...
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Happy New Year!
Happy 2022! I don't know about you, but I'm happy for 2021 to be over. It was a lot. Lots of stress and worry that I didn't even realize I was having. Then for one more punch before ending, Betty...
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Updates and Pupdates
Wow - I'm really sucking at keeping this blog updated. I guess the good news is that I'm feeling great, don't even think about having CF and busy living my life.Unfortunately my time is mostly spent...
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CF Appointment 6.8.22 Updates and Pupdates
It's been busy around here - I turned 39!! What?! Only 1 year away from 40...and I'm looking forward to that awesome milestone, but I'm definitely freaked out by the number a bit. I just have to...
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Pupdate: Stella
I've dreaded the day that it would happen and hoped it was far off in the future, but it happened. My sweet, stubborn, sassy tripawd passed away. She had her appointment in June that showed the...
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Pupdate: Sarge
Our beloved Sarge has passed away, and yet again I'm left broken hearted. I know I haven't posted since Stella's passing but will try and do better. We did add a bundle of joy to our family since...
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